《罕见疾病慈善演唱会》影片英文名:hanjianjibingcishanyanchanghui。发布于2025年,并在美国上映。由马修·芬兰执导携幕后团队创作。集艾迪·韦德等著名实力派明星加盟。
Set against the backdrop of a powerful and emotional benefit performance by Eddie Vedder, Matter of Time chronicles the fight to cure epidermolysis bullosa (EB), a rare and often fatal genetic disease.